Malaysian Rare Disorders Society (MRDS)

We represent and look out for the welfare of individuals including their families that are affected by rare disorders.

Learn More

About MRDS

Who We Are

Malaysian Rare Disorders Society (MRDS) was formed in 2004, with the help and guidance of the Genetic Unit, Department of Paediatrics, University Malaya Medical Centre.

Our Objectives

MRDS is a voluntary organisation set-up to represent and look out for the welfare of individuals including their families that are affected by rare disorders.

Participants from Malaysia: Members from MRDS, Malaysia Lysosomal Diseases Association and Malaysia Metabolic Society together with Datuk Azman Abu Bakar, MOH Malaysia and the Conference Organising Chairman,  Mr Rajakanth R.
Rare Disorders

Rare disorders including those of genetic origin, are life threatening of chronically debilitating diseases which are of such low prevalence that special combined efforts are needed to address them.

Group discussion with representatives from Philippines, Thailand & Malaysia.
Join Us

Our target members are individuals affected by rare disorders, their families and any organisation that supports MRDS’objectives.

Latest Events & News

4th June 2016 Annual General Meeting

Will be held at Spastic Children’s Association of Selangor & Federal Territory (SCASFT), Dewan Bangunan Sultan Salahuddin Abdul Aziz shah, Lorong Utara 52/A (Off Jalan Utara), Petaling Jaya.

28th Feb 2016 UniKL Run

MRDS is  collaborating with students from the Institute of Medical Science Technology of University Kuala Lumpur (UniKL) who are organising a charity run called ‘Run the rare journey of life’ to be held on 28th February,…

26-28th Feb 2016 Rare Disease Day 2016

To mark Rare Disease Day 2016, MRDS together with Malaysia Lysosomal Diseases Association are holding a photo exhibition located at Ground Floor (near Chilli’s Restaurant), Empire Shopping Gallery, Subang Jaya, Selangor from 26th to 28th February, 2016.…

24th Feb 2014 Rare Disease Day 2014

“Join Together for Better Care” is an apt theme for this year’s Rare Disease Day in Malaysia. Three rare disease patient support groups, namely the Malaysian Rare Disorders Society, the Malaysia Lysosomal Diseases Association and…

13th March 2015 Rare Disease Asia Conference 2015

Malaysian Rare Disorders Society (MRDS) participated in the ‘Love Is Not Rare’, Rare Disease Asia Conference 2015 (Conference) held in Singapore from 12-13 March 2015. The Conference was organized by Rainbow Across Borders. MRDS president,…

28th Feb 2015 RARE DISEASE DAY 2015

KUALA LUMPUR: To mark Rare Disease Day 2015, Malaysian Rare Disorders Society (MRDS) together with the Department of Medical Social Work of University Malaya Medical Centre (UMMC) held a special programme for patients staying at…