MRDS
Malaysian Rare Disorders Society (MRDS) was
formed in 2004, with the help and guidance of the Genetic Unit, Department of
Paediatrics, University Malaya Medical Centre.
MRDS is a voluntary organisation set-up to
represent and look out for the welfare of individuals including their families that are
affected by rare disorders.
We are about RARE disorders. A rare disorder is a medical condition that affects only a few people in the population and usually has genetic origins; think brittle bones disease (penyakit tulang rapuh).
We are about parent support. We hold events where parents share about their experiences in raising their children with rare disorders.
We are about raising community awareness. We join community events to raise awareness about rare disorders.
We are about involving our children in healthy activities. We look for opportunities for our children to participate in such as outings and art activities.
We are about educating ourselves. We want to know what is the latest medical research done on specific rare disorders.
