Malaysian Rare Disorders Society (MRDS) is a voluntary organization that represents the voice of patients and families affected by rare disorders.
When: 4th June 2016 10.00am – 1.00pm (Registration & light breakfast starts at 9.00am) Where: Spastic Children’s Association of Selangor & Federal Territory (SCASFT), Dewan Bangunan Sultan Salahuddin Abdul Aziz shah, Lorong Utara 52/A (Off Jalan Utara), Petaling Jaya. To register, please call 019-7714543 or email info@mrds.org.my
MRDS is collaborating with students from the Institute of Medical Science Technology of University Kuala Lumpur (UniKL) who are organising a charity run called ‘Run the rare journey of life’ to be held on 28th February, 2016 at Taman Tasik Cempaka, Bandar Baru Bangi, Selangor. The public is invited to visit free health screening booths (glucose, […]
To mark Rare Disease Day 2016, MRDS together with Malaysia Lysosomal Diseases Association are holding a photo exhibition located at Ground Floor (near Chilli’s Restaurant), Empire Shopping Gallery, Subang Jaya, Selangor from 26th to 28th February, 2016. Time of the exhibition is 11am to 8pm. The photo exhibition will display photos and information about young Malaysians with […]
Malaysian Rare Disorders Society (MRDS) participated in the ‘Love Is Not Rare’, Rare Disease Asia Conference 2015 (Conference) held in Singapore from 12-13 March 2015. The Conference was organized by Rainbow Across Borders. MRDS president, Dato ‘ Hatijah Ayob and administrative officer, Ms Hanna Ong joined other patient groups’ representatives from the Asia Pacific region […]
KUALA LUMPUR: To mark Rare Disease Day 2015, Malaysian Rare Disorders Society (MRDS) together with the Department of Medical Social Work of University Malaya Medical Centre (UMMC) held a special programme for patients staying at the paediatric wards of UMMC on 28 February, 2015. About 30 parents and children were treated to a magic show […]
“Join Together for Better Care” is an apt theme for this year’s Rare Disease Day in Malaysia. Three rare disease patient support groups, namely the Malaysian Rare Disorders Society, the Malaysia Lysosomal Diseases Association and the Malaysia Metabolic Society have joined together for the first time to organize the Rare Disease Day event in Malaysia. […]
( Photo: Mr Leid Zejnilovic at extreme left and Prof Pedro at extreme right, both of Patient Innovation Project at KL, 7 Dec 2013. ) We are pleased to announce that MRDS is a partner association of the Patient Innovation Project. The Patient Innovation Project is an online, free of charge, web platform for rare […]
The 2nd Malaysia Conference on Rare Disorders with the theme “Developing Strategies for a National Rare Disease Plan” was a significant event for rare disease patients in Malaysia. For the first time, three rare disease patient support groups in Malaysia namely the Malaysian Rare Disorders Society (MRDS), the Malaysia Lysosomal Diseases Association (MLDA) and the […]
Calling all rare disease patients and parents of children with rare disease in Malaysia. MRDS is a conducting a survey on the experience of patients and families living with with rare disorders in Malaysia. Please take a few minutes to do this online survey by clicking on the link below. It is in English and […]
Before the sun rose on the 7th of July 2013, thousands of people were gathered at Sri Pentas, Bandar Utama to sweat it out with friends and staff of ntv7, your ‘Feel Good’ station. It was the occasion of the 15th anniversary of ntv7 and also ntv7’s Feel Good Run. Malaysian Rare Disorders Society (MRDS) […]