Our Objectives
- To support and provide
practical aid to individuals and families affected with rare disorders
- To increase awareness on rare
disorders through providing information on rare disorders and educate
individuals, families, medical professionals, schools, organizations and to
the general public.
- To establish a network between
individuals and families with rare disorders with relevant organizations,
professionals, education and intervention centers.
- To collaborate with organizations that has the potential to affirm, prevent,
improve treatment and increase the quality of life of individuals affected
with rare disorders.
