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Our Objectives

To support and provide practical aid to individuals and families affected with rare disorders

To increase awareness on rare disorders through providing information on rare disorders and educate individuals, families, medical professionals, schools, organizations and to the general public.

To establish a network between individuals and families with rare disorders with relevant organizations, professionals, education and intervention centers.

To collaborate with organizations that has the potential to affirm, prevent, improve treatment and increase the quality of life of individuals affected with rare disorders