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Rare Disorders

 

Rare disorders including those of genetic origin, are life threatening of chronically debilitating diseases which are of such low prevalence that special combined efforts are needed to address them. As a guide, low prevalence is taken as a prevalence of less than 1 per 4000 in the community.

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EURORDIS represents about 300 rare disease

organisations in over

300 countries, covering more than 1,000 rare diseases.

 

 

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